New research and clinical trials are showing real promise for the use of cysteamine for the treatment of cystic fibrosis. Since much of the research regarding cysteamine for CF is very new, this blog has been created as a resource for CF patients and caregivers who want to know more. Disclaimer: Please consult your physician before attempting to use any of the medications listed on this site. For informational purposes only.
*See prescribing information for each specific drug and consult your physician.
In the Italian study, cysteamine bitartrate (trade name Cystagon®, Orphan Europe), oral administration of 150 to 300 mg of cysteamine base every 6 h.
Epigallocatechin gallate (EGCG) (trade name Epinerve®, SIFI Pharmaceuticals). 270 mg once daily.
In the Aberdeen trial, the dosing schedule is as follows:
Dosing will be in accordance with licensed use of cysteamine for cystinosis, i.e.
450mg qds. Dose will be escalated: 450mg once daily for one week 450mg twice daily for one week 450mg three times daily for one week 450mg four times daily (every 6 hours) for two weeks